Day 2 at the hospital

Well, it is 1030 and we have spoken with a genetic counsellor and a neurologist. We are not feeling very hopeful at this point. The neurologist strongly feels that she has a "very serious muscle disease" called Spinal Muscular Atrophy. Of course, we have to do some genetic testing to find out if he is right. In the meantime, we're not supposed to look it up on the internet because we'll just get scared. What do you think is the first thing we did after they left? And how long do we have to wait until we get the results from genetics? Could be months.

We have been warned by friends, however, that they were given big scary diagnoses early on for their children that ended up not being the case, so we don't want to completely rely on this possible diagnosis until we know for sure. He decided that this is what he thinks it is after about 5 minutes of looking at her, so of course it is not a true diagnosis.

Basically, right now we're feeling pretty deflated and scared, but at the same time, we still have our beautiful little Dallyce, and we have the knowledge that God loves us and her. That's the most important thing. He is holding us, and will help us through every step of this, whatever thoe steps may be. Thanks for all the prayers and support. Looks like we may be going home tonight, so that's good. I like working here, but I don't like being on the other end.